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ECFTSS

ECFTSS

European Cystic Fibrosis Twin and Sibling Study Biobank

 

The biobank contains samples (DNA, sera, bacterial airway isolates) of the ECFTSS from 158 clinics in 14 European countries, tissue, and biopsies from other CF patients and DNA samples from CF families. The biobank moreover harbors the worldwide largest collection of Burkholderia cepacia complex and Pseudomonas aeruginosa strains.

 

Types of sample

  • 1500      DNA samples of CF families
  • 150         tissue samples of 150 CF patients
  • 400         bloodsamples from 400 CF patients
  • 1800      sera samples from 200 CF patients
  • 350         B. cepacia complex strains of 80 CF patients
  • 5000      P. aeruginosa strains from inanimate environment, plants, animals and human infections

 

Storage conditions:

  • DNA: 4°C
  • tissue: -197°C
  • blood samples: -20°C
  • sera: -20°C

 

Consent:

  • specific consent